A few months ago Grasshopper’s school nurse, Amber, told me she had been contacted by some folks from the Pike Road Lions Club. Continue reading →
Thanks to support from my family (special thanks to my sister-in-law Denise) I have reached out to some media sources in order to make the Sugar Rush Survivors message of hope, support, and T1D awareness available to more people. Today the Yellowhammer News published my piece called “Struggling,” Continue reading →
After dealing with diabetes as a family for four years and four months, I think of it as if I am holding a pencil in my outstretched hand. I am relatively confident now in the daily decisions that need to be made. Thanks to Sugar Surfing techniques I am usually able to run Grasshopper’s blood sugar control as a background program in my mind instead of as the main focus of my day. But of course it is always there. It is like holding a pencil in your outstretched hand. The pencil is light and easy to hold. But if you hold your arm straight out for a minute or two, your arm starts to hurt, to shake with fatigue. Trying to be a stand in pancreas for a few hours is hard. But what is harder is being a stand in pancreas day after day, trying to be a consistent, constant force against a chronic condition that frequently changes. Our family has been holding that pencil for Grasshopper for four years and counting. We will keep it up, of course, because we want him to have blood sugar levels as close to those of a non-type 1 diabetic as possible. We will hold this for him and teach him how to hold it. But wow, is my arm is tired.
One thing that helps is to laugh. The diabetic online community (DOC) is a clever, supportive bunch, over all. T1D is a serious life threatening condition. But it also daily offers up ridiculous situations, funny juxtapositions and a sort of language all its own. And the memes. THE MEMES!! They are a kind of relief all their own.
There are plenty of days when type 1 diabetes acts like a certain annoying MTV character.
This November, for Diabetes Awareness, we are saving all of Grasshopper’s used type 1 diabetes supplies in this pumpkin decorated with a blue circle, the international symbol of T1D. Shown here are the results of four insulin infusion site changes, one Dexcom change, five AccuCheck FastClix lancet drums for poking Grasshopper’s fingers, Annie’s Fruit Snacks for low blood sugar and a lot of One Touch Ultra Blue Test Strips, each one marking one finger poke.
Gabbing with Grasshopper
Celebration comes on Kid’s Place Live radio (channel 078, Sirius XM) in the car.
Grasshopper: It’s our song!
Me: Remember, if you decide to get married I want to dance with you at your wedding to this song.
Grasshopper, nodding: Uh huh. No, wait. Actually, “We Will Rock You.” Continue reading →
On November 1, 2017, we changed Grasshopper’s infusion site, which is the method by which we get insulin into his body. We do this every three days, rotating sites through his left thigh, left side of his tummy, right side of his tummy, and his right thigh.
At our neighborhood Halloween party I shared with a friend that I had just checked Grasshopper’s blood sugar and it was 41, VERY LOW. He had been jumping on a bounce house and the exercise had quickly brought his blood sugar down. She kindly asked some questions about how I knew to check and I described to her the Dexcom data and why I had checked right then. She asked, “How are you not on edge every day?” I answered, “I am.” Continue reading →
Halloween was a hallowed tradition in my childhood, as it was and still is for millions of American children.
I was always so excited to create my costume for that one spooky night. When I became a parent I was thrilled at the prospect of sharing all of that excitement with my child. Continue reading →