Camp Seale Harris

by Erin

A few months ago Grasshopper’s school nurse, Amber, told me she had been contacted by some folks from the Pike Road Lions Club. Continue reading →

Choose Kind

by Erin

I recently watched “Wonder” on Amazon Prime Video. It is the story of a family whose son is born with Treacher-Collins syndrome, a condition which alters the development of the bones and tissue in the face. I know I am late to the conversation as the book was published in 2012 and the movie came out in 2018, but I have had a couple of kids and some crazy years recently. Reference: all of my posts on this blog. Continue reading →

Chronically Meme Happy

by Erin

After dealing with diabetes as a family for four years and four months, I think of it as if I am holding a pencil in my outstretched hand. I am relatively confident now in the daily decisions that need to be made. Thanks to Sugar Surfing techniques I am usually able to run Grasshopper’s blood sugar control as a background program in my mind instead of as the main focus of my day. But of course it is always there. It is like holding a pencil in your outstretched hand. The pencil is light and easy to hold. But if you hold your arm straight out for a minute or two, your arm starts to hurt, to shake with fatigue. Trying to be a stand in pancreas for a few hours is hard. But what is harder is being a stand in pancreas day after day, trying to be a consistent, constant force against a chronic condition that frequently changes. Our family has been holding that pencil for Grasshopper for four years and counting. We will keep it up, of course, because we want him to have blood sugar levels as close to those of a non-type 1 diabetic as possible. We will hold this for him and teach him how to hold it. But wow, is my arm is tired.

One thing that helps is to laugh. The diabetic online community (DOC) is a clever, supportive bunch, over all. T1D is a serious life threatening condition. But it also daily offers up ridiculous situations, funny juxtapositions and a sort of language all its own. And the memes. THE MEMES!! They are a kind of relief all their own.

There are plenty of days when type 1 diabetes acts like a certain annoying MTV character.

Struggling

by Erin

That’s what the mom right before me in line to check in late to school had written in the “reason” column. Continue reading →

Going Down

by Alese

[From Erin: When I first met Alese I would often ask her to explain how certain T1D situations felt to her. Lows, highs, in range, blood sugar rising or falling quickly… Grasshopper couldn’t tell me yet how he felt. She still sends me explanations and it is really helpful to hear her perspective.]

When my blood sugar has been super high, and I’ve bolused some insulin with my OmniPod pump to bring it back down, I can feel the insulin starting to kick in before it shows up in my Dexcom graph and numbers. My body starts feeling lighter. Weightless. Possible translation: When you are standing in an elevator and it starts going down. That momentary lightness is similar.

How do you explain the T1D situations you feel to the muggles in your life?

(Credit: https://www.azcentral.com/story/entertainment/music/2016/07/21/steven-tyler-concert-review-phoenix-country/87385346/ )

Dosing & Daffodils

by Erin

Spring has come to Sugar Rush Survivors land. The daffodils are coming up in our front yard. Life springs anew, life moves on. Continue reading →

Magic School Bus

by Erin

Grasshopper’s class went to the zoo the week before Thanksgiving. It was his first field trip as a kindergartner. He was thrilled to go to the zoo with his school friends but he was absolutely beside himself about going there on a big yellow school bus! Continue reading →