Thanks to support from my family (special thanks to my sister-in-law Denise) I have reached out to some media sources in order to make the Sugar Rush Survivors message of hope, support, and T1D awareness available to more people. Today the Yellowhammer News published my piece called “Struggling,” Continue reading →
Gabbing with Grasshopper
Him: What did you say those big kids in white clothes were doing at school today? Typeonediabetesdo?
Me: Do you mean taekwondo?
Today we are kicking type 1 diabetes martial arts style! Conversations like this remind me that we each see the world from our own lens. Grasshopper’s perspective is different than mine. Type 1 diabetes is part of his frame of reference for the world. It has been for the majority of his six years of life and will be until, God willing, there is a cure. But in the mean time, we will continue living each day, overcoming each new obstacle, passing the tests type one diabetes throws our way. This is our life. This is his life. He takes each day as it comes and keeps going. Type 1 diabetes is a part of his life, not the whole of his life. Typeonedo!
After dealing with diabetes as a family for four years and four months, I think of it as if I am holding a pencil in my outstretched hand. I am relatively confident now in the daily decisions that need to be made. Thanks to Sugar Surfing techniques I am usually able to run Grasshopper’s blood sugar control as a background program in my mind instead of as the main focus of my day. But of course it is always there. It is like holding a pencil in your outstretched hand. The pencil is light and easy to hold. But if you hold your arm straight out for a minute or two, your arm starts to hurt, to shake with fatigue. Trying to be a stand in pancreas for a few hours is hard. But what is harder is being a stand in pancreas day after day, trying to be a consistent, constant force against a chronic condition that frequently changes. Our family has been holding that pencil for Grasshopper for four years and counting. We will keep it up, of course, because we want him to have blood sugar levels as close to those of a non-type 1 diabetic as possible. We will hold this for him and teach him how to hold it. But wow, is my arm is tired.
One thing that helps is to laugh. The diabetic online community (DOC) is a clever, supportive bunch, over all. T1D is a serious life threatening condition. But it also daily offers up ridiculous situations, funny juxtapositions and a sort of language all its own. And the memes. THE MEMES!! They are a kind of relief all their own.
There are plenty of days when type 1 diabetes acts like a certain annoying MTV character.
That’s what the mom right before me in line to check in late to school had written in the “reason” column. Continue reading →
[From Erin: When I first met Alese I would often ask her to explain how certain T1D situations felt to her. Lows, highs, in range, blood sugar rising or falling quickly… Grasshopper couldn’t tell me yet how he felt. She still sends me explanations and it is really helpful to hear her perspective.]
When my blood sugar has been super high, and I’ve bolused some insulin with my OmniPod pump to bring it back down, I can feel the insulin starting to kick in before it shows up in my Dexcom graph and numbers. My body starts feeling lighter. Weightless. Possible translation: When you are standing in an elevator and it starts going down. That momentary lightness is similar.
How do you explain the T1D situations you feel to the muggles in your life?
(Credit: https://www.azcentral.com/story/entertainment/music/2016/07/21/steven-tyler-concert-review-phoenix-country/87385346/ )
“He is not here; he has risen, just as he said. Come and see the place where he lay.” Matthew 28:6
We went to the Easter vigil Mass last night and we all survived without meltdowns. Even me! Grasshopper was amazed that he got to hold a candle and that there was A FIRE outside. Sunshine loved the ringing of the bells when we all sang Alleluia over and over. She shook her hand like she was holding a bell and laughed and laughed. With joy we greet our risen Lord! Continue reading →