Sunshine and Shadows

I like to share the positives. The triumphs. The laughs. I like the sunshine and light.

Those things are easy to tell. Easy to share and pass along.

This day earlier in January was a triumph of fun even though we had to treat several lows.

It is important, however, to also share our struggles. That is when I hear from others, “I am so glad to know I am not alone.”

It wouldn’t be fair of me to tell you that managing type 1 diabetes is easy. That’s just not true. And we have been incredibly blessed. Even with the technology we have, the access to insulin, insurance, a great medical team, understanding school officials, wonderful teachers, an amazing school nurse and a kind, caring, attentive aide. Even with easy, clear communication between all parties.

This. Is. Hard.

There are countless people dealing with T1D with out consistent access to affordable insulin. Who are fighting insurance, schools, and sometimes even family members who make T1D care more difficult than it already is. There are many people out there without a support network in person or even online like T1D Mod Squad, and Beyond Type 1. Let me tell you, trying to do this stuff alone makes it 10,000 times harder.

Not all days are hard. But there is, even on the easier days, a LOT of work that goes into being a substitute pancreas for a little body.

Grasshopper just had to bring his foam swords along, crosses on his back Ninja Turtle style.

I count the positives. I do. And I celebrate them. But one of the reasons I celebrate them so much is because I know the negatives. Glossing over the pain, the lack of sleep for Grasshopper and us, the mental stress, the worry when he asks us to check on him at night… not talking about that would be to dismiss a huge part of what it is to deal with T1D day in and day out. To be clear, that’s my 6 year old worried about his blood sugar at night. Let that sink in for a bit. That’s a dark mental corner right there. My first grader is asking me to be sure he will make it through the night.

I greet the light with more enthusiasm for having been in the dark.

We have had some fast, scary lows lately. As I write this, while walking on the treadmill because MAMA NEEDS ENDORPHINS, I am also texting with Grasshopper’s team at school. We’ve been dealing with a persistent low all morning. He is eating his snack now. He has a cup of Greek yogurt with 11g carbs and two chocolate Maria cookies at 8g carbs. I’m flipping back and forth from WordPress to his Dexcom graph, willing it to go up. Who needs tv drama when I have Dexcom theater?

Because of my fear, worry, and stress, I try to seek out the bright bits in the dark. Like giggling about telling my 6 year old son to eat his cookies first! Ok, maybe it’s not laugh out loud HA-HA funny, but it tickles me and keeps me going towards the next issue we’ll face.

I know YOU, reading this right now are dealing with your own issues, struggles, worries and fears. They may be quite different than the ones my family faces, or they may be similar. Whatever they are, please know that you can share them, you don’t have to minimize it, and you definitely are not alone.

P.S. Thank goodness his blood sugar is finally coming up!

First of All, It Was October…

Every autumn Bartlett Ranch, a working horse and cattle farm near us, hosts an evening celebrating Alabama farmers. It is always a fun time and sure sign that the endless Alabama summer is finally waning.

We had a great evening at Bartlett Ranch! Arrows were shot, turkey feathers found, and apples were pressed.

Calves, goats, cows, and snakes were admired. Balloons were acquired. Firetrucks were explored. We Sugar Surfed our way through a hotdog (1 gram of carbohydrates), hotdog bun (21g carbs), chips (15g carbs), and Chips Ahoy cookies (15g carbs). Continue reading →

20 Minute Poop Storm

In the space of about 20 minutes on Tuesday evening, the following happened:

  • I dosed Grasshopper for a 40 gram weight piece of cinnamon roll for dessert. That is a sliver of a roll, not a whole one. It was a 20 gram carb treat. I sent him to put on his pjs so the insulin could have a little time to work.
  • He walked out a few minutes later holding his insulin infusion site… that was supposed to be attached to his body. I tried to hide my instant anxiety. When did it come off? Did it come off before his 24 gram carb dinner? Did he get any insulin for dinner? Did it come off after dinner but before I dosed for the cinnamon roll slice? Did he get any insulin for that??? Continue reading →

Sweet Friends

This particular purple pouch is a very special pack of Annie’s Bunny Fruit Snacks. In our family we just call them gummies. After a day of low blood sugars at school, I picked up Grasshopper. Nurse L and I had been in contact throughout the day and she had just checked his blood sugar at 58. He had a few of these Annie’s Bunny Fruit Snacks while still in her office and a few minutes later she walked him out to car line.

Continue reading →

T1D is a Beach: 7 Tips for Your Summer With Type 1 Diabetes

by Erin

Summer is almost over (officially) for us, and I have been taking notes and pictures all season long. But let’s get real. We live in Alabama and it will be hot through October! So these tips and products are relevant for us most of the year. Continue reading →

Pizza Dilemma

by Alese
Carb cutting always makes it to my New Year’s resolutions.  As does not procrastinating  which is why New Year’s resolutions end up being more of a February thing for me.  In an attempt to be proactive I thought I would start mid January.  Continue reading →